July 20, 2025

Vita Nectar

Health is the main investment in life

Self protective health care in childhood cancer survivors from the perspective of survivors, parents, and professionals: a qualitative study | BMC Health Services Research

Self protective health care in childhood cancer survivors from the perspective of survivors, parents, and professionals: a qualitative study | BMC Health Services Research
  • Seelisch J, Sung L, Kelly MJ, Raybin JL, Beauchemin M, Dvorak CC, Kelly KP, Nieder ML, Noll RB, Thackray J, et al. Identifying clinical practice guidelines for the supportive care of children with cancer: a report from the Children’s Oncology Group. Pediatr Blood Cancer. 2019;66:e27471. https://doi.org/10.1002/pbc.27471.

    Article 
    PubMed 

    Google Scholar 

  • Tonorezos ES, Barnea D, Cohn RJ, Cypriano MS, Fresneau BC, Haupt R, et al. Models of care for survivors of childhood cancer from across the globe: advancing survivorship care in the next decade. J Clin Oncol. 2018;36(21):2223–30. https://doi.org/10.1200/JCO.2017.76.5180.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Siegel DA, King JB, Lupo PJ, Durbin EB, Tai E, Mills K, Van Dyne E, Lunsford NB, Henley SJ, Wilson RJ. Counts, incidence rates, and trends of pediatric cancer in the United States, 2003–2019. JNCI. 2023;115(11):1337–54. https://doi.org/10.1093/jnci/djad115.

    Article 
    PubMed 

    Google Scholar 

  • Islami F, Ward EM, Sung H, Cronin KA, Tangka FKL, Sherman RL, Zhao J, Anderson RN, Henley SJ, Yabroff KR, Jemal A, Benard VB. Annual report to the nation on the status of cancer, part 1: national cancer statistics. J Natl Cancer Inst. 2021;113(12):1648–69. https://doi.org/10.1093/jnci/djab131.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Rees JR, Weiss JE, Riddle BL, Craver K, Zens MS, Celaya MO, Peacock JL. Pediatric cancer by race, ethnicity and region in the United States. Cancer Epidemiol Biomarkers Prev. 2022;31(10):1896–906. https://doi.org/10.1158/1055-9965.EPI-22-0317.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Ahmadnia Sh, Kamel Ghalibaf A, Kamkar S, Mohamadzadeh Z, Ghalibafian M. Survivor and parent engagement in childhood cancer treatment in Iran. Ecancer. 2021;15:1220. https://doi.org/10.3332/Ecancer.2021.1220.

    Article 

    Google Scholar 

  • Shabani M, Saeedi Moghaddam S, Ataeinia B, Rezaei N, Mohebi F, Mohajer B, Gohari K, Sheidaei A, Pishgar F, Yoosefi M, Kompani F, Farzadfar F. Trends of National and subnational incidence of Childhood Cancer groups in Iran: 1990–2016. Front Oncol. 2020;9:1428. https://doi.org/10.3389/fonc.2019.01428.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Kagramanov D, Sutradhar R, Lau C, Yao Z, Pole JD, Baxter NN, Gupta S, Nathan PC. Impact of the model of long-term follow-up care on adherence to guideline-recommended surveillance among survivors of adolescent and young adult cancers. Cancer Med. 2021;10(15):5078–87. https://doi.org/10.1002/cam4.4058.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Signorelli C, Wakefield CE, Fardell JE, Brierley ME, Darlington AS, Williamson J, Downie P, Cohn RJ, ANZCHOG Survivorship Study Group. Perceptions of future health and cancer risk in adult survivors of childhood cancer: implications for engagement in follow-up care. Cancer. 2019;125(6):1008–9. https://doi.org/10.1002/cncr.31934.

    Article 
    PubMed 

    Google Scholar 

  • Akbarbegloo M, Zamanzadeh V, Ghahramanian A, Valizadeh L, Matin H. Health and psychosocial self-care needs in off-therapy childhood cancer: hybrid model concept analysis. Patient Prefer Adherence. 2020;14:803–15. https://doi.org/10.2147/PPA.S246558.

    Article 
    CAS 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Petersson-Ahrholt M, Wiebe T, Hjorth L, Relander T, Linge HM. Development and implementation of survivorship tools to enable medical follow-up after childhood cancer treatment in southern Sweden. JCO Clin Cancer Inf. 2019;3:1–6. https://doi.org/10.1200/CCI.18.00130.

    Article 

    Google Scholar 

  • Nguyen MH, Smets EMA, Bol N, Bronner MB, Tytgat KMAJ, Loos EF, van Weert JCM. Fear and forget: how anxiety impacts information recall in newly diagnosed cancer patients visiting a fast-track clinic. Acta Oncol. 2019;58(2):182–8. https://doi.org/10.1080/0284186X.2018.1512156.

    Article 
    PubMed 

    Google Scholar 

  • Sadak KT, Gemeda MT, Grafelman M, Neglia JP, Freyer DR, Harwood E, Mikal J. Identifying metrics of success for transitional care practices in childhood cancer survivorship: a qualitative interview study of survivors. BMC Cancer. 2020;20:898. https://doi.org/10.1186/s12885-020-07360-9.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Koh D, Song S, Moon SE, Jung SY, Lee ES, Kim Z, Youn HJ, Cho J, Yoo YB, Lee SK, Lee JE, Nam SJ, Lee JE. Adherence to the American Cancer Society guidelines for cancer survivors and health-related quality of life among breast cancer survivors. Nutrients. 2019;11(12):2924. https://doi.org/10.3390/nu11122924.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Cudris -Torres L, Alpi SV, Barrios-Núñez A, Gaviria Arrieta N, Mejía Gutiérrez J, Alvis Barranco L, Rios-Carlys G, Cuenca-Calderón SE, Bermúdez V, Hernández-Lalinde J, Riveira Zuleta CA, Bahamón MJ, Álvarez Herrera JS. Quality of life in the older adults: the protective role of self-efficacy in adequate coping in patients with chronic diseases. Front Psychol. 2023;6(14):1106563. https://doi.org/10.3389/fpsyg.2023.1106563.

    Article 

    Google Scholar 

  • Roh S, Burnette CE, Lee YS, Giger JT, Goins RT, Petereit DG, Fastro MD, Lawler MJ, Lee KH. Identifying risk and protective factors related to depressive symptoms among Northern plains American Indian women cancer survivors. Women Health. 2019;59(6):646–59. https://doi.org/10.1080/03630242.2018.1544965.

    Article 
    PubMed 

    Google Scholar 

  • Ha L, Nevin SM, Wakefield CE. Exploring childhood cancer survivor, parent, healthcare and community professionals’ experiences of, and priorities for, using digital health to engage in physical activity: a mixed methods study. J Cancer Surviv. 2024;2024:1–16. https://doi.org/10.1007/s11764-024-01560-z.

    Article 

    Google Scholar 

  • Akbarbegloo M, Sanaeefar M, Karimi M. Perceived vulnerability related to health in cancer post-treated adolescent in Iran: a content analysis. BMC Public Health. 2024;24:1909. https://doi.org/10.1186/s12889-024-19404-x.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Diekelmann N, Allen D, Tanner CA. The NLN criteria for appraisal of baccalaureate programs: a critical hermeneutic analysis. New York: Natl League for Nursing Pr; 1989. https://doi.org/10.1111/j.1365-2648.1996.tb00041.x.

    Book 

    Google Scholar 

  • Busetto L, Wick W, Gumbinger C. How to use and assess qualitative research methods. Neurol Res Pract. 2020;2(14):1-10. (2020). https://doi.org/10.1186/s42466-020-00059-z.

    Article 

    Google Scholar 

  • Lincoln YS, Guba E. Naturalistic Inquiry. Newbury Park, CA, London, New Delhi: Sage; 1985.

    Book 

    Google Scholar 

  • Nunes MM, Lopes MV, da Silva VM, Leandro TA, Fróes NB, Almeida AA, et al. Validation of clinical indicators of the nursing diagnosis of ineffective protection in adolescents with cancer. J Pediatr Nurs. 2018;42:e58–65. https://doi.org/10.1016/j.pedn.2018.05.001.

    Article 
    PubMed 

    Google Scholar 

  • Mullan B, Norman P, Boer H, Seydel E. Protection Motivation Theory. In: Conner M, Norman P, editors. Predicting health behavior. 2nd ed. Berkshire: Open University Press; 2005.

    Google Scholar 

  • Friedenreich CM, Stone CR, Cheung WY, Hayes SC. Physical activity and mortality in Cancer survivors: a systematic review and Meta-analysis. JNCI Cancer Spectr. 2019;4(1):pkz080. https://doi.org/10.1093/jncics/pkz080.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Jochem C, Leitzmann M. Physical activity and sedentary behavior in relation to Cancer Survival: a narrative review. Cancers. 2022;14(7):1720. https://doi.org/10.3390/cancers14071720.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Qiu L, Ye M, Tong Y, Jin Y. Promoting physical activity among cancer survivors: an umbrella review of systematic reviews. Support Care Cancer. 2023;31:301. https://doi.org/10.1007/s00520-023-07760-0.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Perkins JL, Chen Y, Harris A, Diller L, Stovall M, Armstrong GT, Yasui Y, Robison LL, Sklar CA. Childhood Cancer Survivor Study. Infections among long-term survivors of childhood and adolescent cancer: a report from the Childhood Cancer Survivor Study. Cancer. 2014;120(16):2514–21. https://doi.org/10.1002/cncr.28763.

    Article 
    PubMed 

    Google Scholar 

  • Buro AW, Stern M. Infection risk among long-term pediatric cancer survivors: conceptual framework for health promotion and call for inquiry. Transl Pediatr. 2023;12(12):2103–6. https://doi.org/10.21037/tp-23-411.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Pedretti L, Massa S, Leardini D, Muratore E, Rahman S, Pession A, Esposito S, Masetti R. Role of Nutrition in Pediatric patients with Cancer. Nutrients. 2023;15(3):710. https://doi.org/10.3390/nu15030710.

    Article 
    CAS 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Cohen J, Collins L, Gregerson L, Chandra J, Cohn RJ. Nutritional concerns of survivors of childhood cancer: a First World perspective. Pediatr Blood Cancer. 2020;67(S3):e28193. https://doi.org/10.1002/pbc.28193.

    Article 
    PubMed 

    Google Scholar 

  • Beaulieu-Gagnon S, Bélanger V, Marcil V. Food habits duringtreatment of childhood cancer: a critical review. Nutr Res Rev. 2019;32(2):265–81. https://doi.org/10.1017/S0954422419000131.

    Article 
    CAS 
    PubMed 

    Google Scholar 

  • Prasad M, Goswami S, Chinnaswamy G, Banavali SD, Kurkure PA. Long-term outcomes in survivors of childhood cancer: a 30-Year experience from India. Pediatr Oncol. 2022;8(8):1–10. https://doi.org/10.1200/GO.22.00044.

    Article 

    Google Scholar 

  • Webster SN, Spunt SL, Cunningham SJ, Wakefield CE, Smith SM, Alberts NM, Palesh O, Simons LE, Heathcote LC. International Survey of Pediatric oncologists’ beliefs and Communication practices regarding Symptom Self-Monitoring by Childhood Cancer survivors. JCO Oncol Pract. 2023;19(5):e650–9. https://doi.org/10.1200/OP.22.00630.

    Article 
    PubMed 

    Google Scholar 

  • Kelada L, Wakefield CE, Heathcote LC, Jaaniste T, Signorelli C, Fardell JE, Donoghoe M, McCarthy MC, Gabriel M, Cohn RJ, ANZCHOG survivorship study group. Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer. Patient Educ Couns. 2019;102(12):2270–8. https://doi.org/10.1016/j.pec.2019.06.022.

    Article 
    CAS 
    PubMed 

    Google Scholar 

  • Chua GP, Ng QS, Tan HK, Ong WS. Cancer survivors: what are their information seeking behaviours? J Cancer Educ. 2021;36(6):1237–47. https://doi.org/10.1007/s13187-020-01756-8.

    Article 
    PubMed 

    Google Scholar 

  • Budenz A, Sleight AG, Klein WMP. A qualitative study of online information-seeking preferences among cancer survivors. J Cancer Surviv. 2022;16:892–903. https://doi.org/10.1007/s11764-021-01082-y.

    Article 
    PubMed 

    Google Scholar 

  • Stenmarker M, Björk M, Golsäter M, Enskär K. Everyday life during the childhood cancer trajectory-childhood cancer survivors’ descriptions of the role of caring support. Front Rehabil Sci. 2023;4:1098933. https://doi.org/10.3389/fresc.2023.1098933.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Douki HE, Elyasi F, Hasanzadeh R. Effectiveness of positive thinking training on anxiety, depression and quality of life of mothers of children with leukemia. J Nurs Midwifery Sci. 2019;6:21–6. https://doi.org/10.4103/JNMS.JNMS_33_18.

    Article 

    Google Scholar 

  • Sooreh J, hajloo N, atadokht A, basharpoor S. Comparing the effectiveness of positive thinking skills (PTS) and mindfulness-based cognitive therapy (MBCT) in promoting demoralization and Psycho-Social Adjustment in Cancer patients. JSUMS. 2023;30(2):193–207.

    Google Scholar 

  • Moore K, Talwar V, Gomez-Garibello C, Bosacki S, Moxley-Haegert L. Children’s spirituality: exploring spirituality in the lives of cancer survivors and a healthy comparison group. J Health Psychol. 2017;25(4):135910531773760. https://doi.org/10.1177/1359105317737605.

    Article 

    Google Scholar 

  • Rossato L, Benfato JC, Ullán AM, Scorsolini-Comin F. Religious–spiritual experiences of family members and caregivers of children and adolescents with cancer. Palliat Support Care. 2022;20(5):711–9. https://doi.org/10.1017/S1478951521001590.

    Article 
    PubMed 

    Google Scholar 

  • Chen C, Sun X, Liu Z, Jiao M, Wei W, Hu Y. The relationship between resilience and quality of life in advanced cancer survivors: multiple mediating effects of social support and spirituality. Front Public Health. 2023;11:1207097. https://doi.org/10.3389/fpubh.2023.1207097.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar 

  • Afshari A, Homayounpour M, Serajpour N, Taheri Kashani Z. Exploring lived experience of children with Cancer about the Disease and its consequences: a qualitative study. JRPH. 2019;13(1):125–38.

    Google Scholar 

  • Rashidi M, Khodabakhshi-koolaee A, Vahedian Ardakani H. Comparison of spiritual experiences and hope between breast Cancer survivors and healthy counterparts. JCBR. 2019;3(2):21–6. http://jcbr.goums.ac.ir/article-1-217-en.html.

    Article 

    Google Scholar 

  • link

    Leave a Reply

    Your email address will not be published. Required fields are marked *

    Copyright © All rights reserved. | Newsphere by AF themes.